Home again, home again jiggity jig

It has been 4 weeks that we have been in Calgary and I was so ready to come home. The doctors discharged us this morning and I had my RMH room all clean and everything ready to put in the van yesterday, just in case. We were waiting for Parkers blood work to come back, and it did yesterday night. His CMV load was 8700 up from 5000 on Friday. :( They let us come home but if his load goes up over 15000 then back to Alberta Children's we go. So we have to do blood work on Friday and so on Monday we'll know more. He has caught some gastro bug from his brother and so I'm back to changing a million poopy diapers a day.

It was great to come home and get a tonne of hugs from Brock and Kaden was so proud to show me all of the crafts and projects that he was working on. It's so fun to see Parker get so excited to play with his brothers and be with them. His personality is really coming out.

I just love my boys

The Weirdest Thing

In the last 3 weeks my ear/jaw has been hurting and I wasn't sure what was wrong. I thought that maybe I was grinding my teeth or clenching while I slept from the stress that had newly arrived in my life. It would come and go and so I thought not much of it. Well it came back last night after me not feeling it for a week and Jim was here. The pain was worse than ever, I couldn't eat or even open my mouth. He got out his little medical i phone app, typed in all my symptoms and decided that I probably had the mumps. Now Parker couldn't get his MMR immunizations because it is a live vaccine and it would do damage with his new heart. I put him to bed at the hospital hoping to talk to a doctor, but they can't check out adults by law. So one of my new nurse friends got me into an urgent care place, she called them and told them that my baby just had a heart transplant and they all felt sorry for me and got me in right away in front of all the other people waiting. Ha ha I guess there is some benefits to having a sick child. So the Doctor comes in and looks in my throat, looks in my ear and says oh my you have something in there. now I'm starting to worry, thinking its a bug that crawled in. So he gets some tweezers and pulls out a 5 mm flower. I think that's what it is anyway. It looks like the middle pollen thing... so weird how that got in there and how it was making my ear and jaw swell up I have no idea. I'm pretty grossed out by it and I hope he got it all cause it still hurts when I eat. When the doctor left he says "don't worry Jess you'll be fine, and don't you know flowers are for planting not putting in your ears, so stop doing that". I was still in shock, so I just left and and took a pain med. SOOOOO weird!!

Anyone have any other idea what it could be???

Update on Parker

Well we are into week three of being at the Alberta Childrens Hospital. Parker is doing pretty good. We have been getting weekly blood work on tuesdays. When we got attmitted his CMV level was 823 000 last week it was 200 000 and this week it was 70 000 so its coming down nicely. We have to wait till it's 0 and they are not too sure how long its going to take so we'll have to see what happens next week. We are fighting right now to keep his IVs in. His Pic line came out yesterday and so we've put two temporary IVs in, in 24 hours. He's so active that they are hard to keep in, so back to the OR to get a new line in tomarrow. Which means no food and a cranky boy. The doctor that put his last pic in line said that it took him a 2 hours to get it in and that there is not many vessels left to put something in this round. They are going to have to get a radiologist to come in and ultrasound his vessels so they can actually see where the blood is coming and going. I hope that we get in soon, he's just going to be on the emergency list. Wish us LUCK!!