Another Dang Friday April 17, 2010

Hello everyone, I don't know if everyone knows but we have had some issues with Fridays. Eveything bad that has happened has happened with the acception of one or two events. I always dred Fridays, and think what's going to happen this week. This particular Friday started off really good, it was beautiful outside so Jim and I got to take Parks outside for a walk, it was amazing, its was the first time that hes been outside in more than 2 months. When we got back inside he had a nap and then woke up and he was acting weird again. He wouldnt sit and his left leg wasnt moving. We called the docs in and they got a stat CT and the neurologist to come and see him. It came back that there was a little something on the scan but they couldnt tell totally what had happened. But from his symtoms they said that he had another stroke. Then on sat at 6:30 in the morn one of his Doctors called and said that they were going to do a pump change in the PICU because he developed another clot and it came about very quick. It has only been 1 week since the last one so they were pulling their hair out. Parks has very weird blood that they cant figure out. He was on 6 different blood thining drugs, but none were working on him like they should have been. 1 hour after the change he had developed 2 fibrines in the pump and so his doc was furious. They got ready to take him back down to the Picu, to start him on a drug that they have never used on children here. The thrombosis doc(blood clotting doc) had to call someone in New York that has used it to get all the details. But this morn things seem to be going better. He is very cranky and crys a lot but he's ok. Anyway that is the latest undate on our crazy little man that is continueing to keep us guessing. We love you all and hope all your lives are going well. Love Jess and Parker