Parkers new heart March 14 2010

Its not what you think....

So on Thurs. we were having a great day. He was back on the heart floor and I was reading him some books and he was laughing and smiling at one little dog book.(which is totally out of the ordinary for him to even smile so I was so happy). They started feeding him by a tube 24 hours a day b/c he has been losing lots of weight lately, so they need to get him fat again. At about 1:00pm he was really mad at someone that was doing something, and started to gag then to puke. He puked so much that he soaked 4 blankets with it. His whole head was dripping with sweat so the docs were there watching him. After I went to take his pants off cause they were dirty and I looked at his legs and he had what looked like big purple bruises all over and then they were on his wrists too. There was not enough blood was profusing to his organs and body. I yelled to them "this is not normal" and they came over to him and got an icu doc to come up to see him and he took him down back to the PICU AGAIN. ( we were quite the joke cause we couldn't leave for more than 3 days) they gave him some epinephrine and they watched him all night. Friday morning Dr Ross his heart surgeon called and said that they wanted to take him into surgery first thing that morn. they put in a thing called the Berlin Heart. You can google it if you want. He was worried that the next time he had an episode that he might not come out of it. What it is, an artificial heart, it is a pump that does all the work for his heart in a box. So he can grow and be a semi normal boy, until a real new heart is available. Anyway they were in surgery from 8:30 - 5:30. Today he was awake and fighting to get his breathing tube out. He looked pretty good considering. I got to feed him a bottle and he loved that after starving 2 whole days. Hes such a trooper. Thank you for fasting for him (if you heard that rumor,) on such short notice. I know that, when the whole family pulls together, the faith is much stronger. Thank you from me and Parker. We love you all.
love jes